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Clinical Patient Management System

Clinical Patient Management System

For most of Rare Diseases (RDs), expertise is scarce and heterogeneously distributed across the EU, especially in the case of ultra-rare diseases, many healthcare professionals, face problems for diagnosis and/or choosing among therapy options in some complex cases and a significant number of patients remain undiagnosed or misdiagnosed. This makes impossible offering a proper prognosis, treatment and genetic counselling to the patients.

Set-up under the 2011 Directive on Patient Rights in Cross-Border Healthcare, European Reference Networks (ERNs) are virtual networks bringing together medical specialists across Europe to tackle rare or complex diseases and conditions that require highly specialized healthcare and a concentration of knowledge and resources. Healthcare providers who are members of ERNs are connected through a dedicated IT platform and, using a variety of telemedicine tools, offer access to expertize and knowledge of multidisciplinary teams, enabling patients suffering from such conditions to receive the best advice for treatment and diagnosis.

In this context, the European Commission DG SANTÉ has provided ERNs with the Clinical Patient Management System (CPMS), a secure web-based application to support the networks in bringing expert specialised care to all patients in Europe the diagnosis and treatment of rare or low prevalence complex diseases or conditions across national borders

The Clinical Patient Management System (CPMS) allows virtual consultation across national borders, ensuring that the needed expertise can travel to the patient, instead of the other way around.

CPMS Operational Helpdesk & Rare Hematological Diseases data set

ERN-EuroBloodNet encompasses more than 450 Rare Hematological Diseases (RHD) which are very heterogenous in their nature and clinical course e.g. oncological vs non-oncological, acute vs chronic or hereditary vs acquired. Accordingly, customization of CPMS is essential to ensure the efficient use of the platform addressing the RHD needs.

As main action funded under the call CEF TELECOM CALL FOR PROPOSALS 2017 CEF-TC-2017-2 for the project "Connecting EuroBloodNet", an Operational Helpdesk has been established to support ERN-EuroBloodNet users in the functioning of the CPMS while identifying the main needs for the customization of CPMS dataset according to hematological requirements.

Do you need help? Contact ERN-EuroBloodNet Operational Helpdesk!(ELIMINAR)

How to use the CPMS?

The European Commission DG SANTÉ has created a set of CPMS user manuals and video training available at the CPMS system.

ERN-EuroBloodNet Operational Helpdesk has produced some guiding documents to support the users in the access and use CPMS.

Here you will find an overview of the CPMS in a brief user guide, the Frequent Asked Questions and supporting material to help you with the use of CPMS:

How to create and activate a CPMS account?

To create a CPMS account you should first create an EU Login. Here are the links and the instructions to follow to create a CPMS account and to submit your request for activation. Once your request is submitted your account will be activated within 24h. Find further information:

How to enrol a patient?

After login on the CPMS the Health professional should click on the 'centre' button and then click on 'enrol patient' and entering all requested data in the appearing page. Find further information:

How to invite experts on your panel?

To invite expert on your panel you should first enter all needed data about your patient in the CPMS at the stage of 'Panel selection' and then click on the 'Invite members' button to invite a clinician for this panel.  Find further information:

I have created the panel but do not know who to invite, can you help me?

In the invitation of experts to the panel, a list of experts with the CPMS user profile created will be shown according to the subthematic areas of expertise.

We encourage you to check the ERN-EuroBloodNet experts on the concrete area of expertise that your case is dealing with. You can search experts by searching the concrete disease in the ERN-EuroBloodNet search tool

If experts found do not have the CPMS user profile created, let us know and we will be glad to support you for inviting them to your case.

How to schedule meeting in the CPMS?

For your patient a meeting with all participating panel members can be scheduled at any stage. Any participating member can request a meeting by clicking on the "Schedule meeting" button. Title, date, time and duration of the meeting should be specified. To join the meeting the participant should just click on a join button meeting. Find further information:

How to upload images for your panel?

In the consultation form of your panel click on "Medical documents". There you will have the opportunity to upload a document by clicking on the "Attach" button and then you should drag the document you want attach to this consultation form. For DICOMs anonymization is done automatically. For other documents make sure to delete any identifying data. Find further information:

How to record a contribution in a panel?

In the “Assessment” stage of the panel flowchart, you will find available the button “Record contribution” where you will be able to write your contribution to the panel and/or upload d pdf document if needed. Find further information:

How to change the patient consent in the CPMS?

The patient/family has the right to change the consent at any time. Patient consent modification can be done directly in the CPMS. To do so the clinician responsible of entering the case should click on the "Centre" button in the CPMS  then choose the patient in the Patient list and reach the enrolment page of the patient. There the consent can be modified.

I would like to check how is the CPMS platform, is it possible to access without entering a case?

Yes! There is a CPMS training platform that allows you to enter “fake” data to test the functioning of the platform. If you are interested contact us in order to send you the credentials to access. 

Need further support?

Contact ERN-EuroBloodNet Operational Helpdesk!(ELIMINAR)

EuroBloodNet User guide in brief

Do you need a short overview of the platform? Download the short user guide!

Euro Blood Net