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Objectives

Resulting from a joint effort of the European Hematology Association (EHA), the European Network on Rare and Congenital Anaemias (ENERCA), the European hematology patient organisations represented in both the EURORDIS European Patient Advocacy Groups (ePAGS) and the EHA Patient Organisations Workgroup, ERN-EuroBloodNet concentrates multidisciplinary teams and highly specialized procedures across EU with the main goal to promote excellence for best health care in RHDs at the EU level by:

  1. Enhancing equal access to highly specialized outcome-based healthcare and cross-border health for RHD in EU
  2. Promoting best practice in prevention, diagnosis and clinical care across EU by the development and update of ERN Clinical Practice Guidelines and other Clinical Decision Making tools
  3. Spreading cutting-edge knowledge and facilitate continuing medical education in the field of RHDs
  4. Providing inter-professional consultation of RHD complex cases by sharing of expertise and safe exchange of clinical information through the Clinical Patient Management System (CPMS)
  5. Strengthening the use and re-use of RHD health data for the provision of best healthcare and for the promotion of research and innovation

In line with these objectives, five main Transversal Fields of action (TFA) has been established to implement annual work plan aiming to achieve ERN-EuroBloodNet goals.

Euro Blood Net