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ENROL and the Top 10 research priorities from the European EuroBloodNet/ASCAT Network of Sickle Cell Disease Patients will be presented at the EHA 25th Congress

ENROL and the Top 10 research priorities from the European EuroBloodNet/ASCAT Network of Sickle Cell Disease Patients will be presented at the EHA 25th Congress

2020-05-26
ENROL and  the Top 10 research priorities from the European EuroBloodNet/ASCAT Network of Sickle Cell Disease Patients will be presented at the EHA 25th Congress

EuroBloodNet will present two posters during the 25th European Hematology Association Annual Congress, which will take place online June 11-21, 2020

The 25th European Hematology Association Annual Congress will take place online from June 11-21 2020 offering hematology as a comprehensive discipline by way of the various types of sessions and diverse range of topics, including the latest news in hematology and its subspecialties, new evidence-based approaches to diagnosis and treatment and unpublished clinical and translational research results, innovative techniques, diagnostic tools and risk-assessment strategies.

ERN-EuroBloodNet will be presenting two posters, including:

  • ENROL: THE EUROPEAN RARE BLOOD DISORDERS PLATFORM (EHA-3167), as the platform conceived in the core of ERN-EuroBloodNet as an umbrella for both new and already existing registries on rare hematological disorders (RHD) aiming to maximize public benefit from data on RHD in agreement with EU regulations for cross-border sharing of personal data and promoting the standards for patient registries' interoperability.

  • PRAGMATIC APPROACH TO EMPOWERING PATIENTS WITH SCD: TOP 10 RESEARCH PRIORITIES FROM THE EUROPEAN EUROBLOODNET/ASCAT NETWORK OF SCD PATIENTS (EHA-2299), showing the results from the Sickle Cell Disease (SCD) Research Prioritisation Workshop at the Annual Scientific Conference on Sickle Cell and Thalassaemia (ASCAT), as a joint project of the ERN-EuroBloodNet, ASCAT members and the patient engagement group Oxford Blood Group. The Top 10 questions represent the priorities that people living with SCD would like the research community to focus on.

Abstracts of the congress are already available!

Find here a detailed program and register