ERN-EuroBloodNet
 
Newsletter - December 2020
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
EURORDIS Recommendations to achieve a mature ERN system in 2030
 
 

The paper, and the accompanying Policy Brief, reviews progress achieved so far and presents EURORDIS vision of a mature European Reference Network system that leaves no person living with a rare disease in uncertainty regarding their diagnosis, care and treatment.

 
 
Read more
 
 
 
 
The EJP RD has launched an Internal Call for Innovation Project in Clinical Trials Methodology in Limited Populations!
 
 

The European Joint Programme on Rare Diseases (EJP RD) will implement the present internal (open to EJP RD beneficiaries and their linked third parties) call for collaborative innovation projects to support collaborations among groups of experts (methodological experts, clinicians, patients...) .

 
 
Read more
 
 
 
 
The ERN-EuroBloodNet coordination team has been expanded with the new incorporation of an ERN manager in Paris!
 
 

Léa MARGOT has joined the ERN-EuroBloodNet coordination team, based at Hôpital Saint-Louis. Welcome on board!

 
 
Read more
 
 
 
 
  
The 5th webinar of the EuroBloodNet's Topic on Focus: Cutaneous Lymphoma program already available on EuroBloodNet's EDU YouTube channel!
 

Visit the EuroBloodNet EDU YouTube channel to watch the 5th of the 8-session program Topic on Focus: Cutaneous Lymphoma, provided by Prof. Dr. Pietro Quaglino and Prof. Dr. Evangelia Papadavid

Read more
 
 
 
 
  
Visit EuroBloodNet’s EDU YouTube channel to see newly added 5 EuroBloodNet Thursday webinars!
 

Another 5 recorded sessions from the EuroBloodNet Thursday Webinars program are available on EuroBloodNet’s EDU channel

Read more
 
 
 
 
  
Keep updated on ERN-EuroBloodNet actions through its communication channels!
 

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!

Read more
 
 
 
© ERN-EuroBloodNet 2024