ERN-EuroBloodNet
 
Newsletter - January 2022
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
A new action for the development of Guidelines on Adult Burkitt Lymphoma has been lauched in ERN-EuroBloodNet!
 
 

Meet the Expert Panel and patient representative involved in the creation of the new Guideline on Adult Burkitt Lymphoma

 
 
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Accelerating Clinical Trials in the EU (ACT EU): The new initiative to optimise the environment for clinical research in Europe!
 
 

The initiative has been created by the European Commission (EC), the Heads of Medicines Agencies (HMA) and the European Medicines Agency (EMA).

 
 
Read more
 
 
 
 
Participate in the new Share4Rare study on health-related quality of life in people living with rare diseases!
 
 

Adult patients or caregivers of pediatric patients are invited to collaborate before the 14th of February 2022.

 
 
Read more
 
 
 
 
  
A School Toolkit for explaining living with a Rare Disease to young children has been launched!
 

The book, titled "A Friendship Story", and the lesson plan are available on the Rare Disease Day website for free.

Read more
 
 
 
 
  
ERN-EuroBloodNet Topic on Focus on Bone Marrow Failures Syndromes for health professionals
 

An educational online program on Bone Marrow Failures Syndromes organized by the ERN-EuroBloodNet in collaboration with the EBMT will be launched in February

Read more
 
 
 
 
  
Participate in The Black Pearl Awards 2022!
 

The online ceremony will be held on Tuesday, 8th February 2022!

Read more
 
 
 
 
  
Keep updated on ERN-EuroBloodNet actions through its communication channels!
 

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