Newsletter - December 2019

Keep informed about the latest information on Rare Hematological Diseases!

Global Globin 2020 Challenge Conference 2019 - Submit your abstract until 15th September!

The Conference will take place next 28th-30th October at the UNESCO, Paris

Read more
"Safety and Efficacy of Mitapivat in Pyruvate Kinase Deficiency" has just been published

The study associates the administration of mitapivat with a rapid increase in the hemoglobin level in 50% of adults with pyruvate kinase deficiency

Read more
First issue of the ERN Newsletter has been launched!

The European Commission has produced the ERN newsletter aiming to inform the ERN community and interested external stakeholders on the last developments of the ERNs ecosystem while promoting cross-ERNs or cross-Member States ideas and experiences

Read more


Read more


Hôpital St Louis / Université Paris 7
1 avenue Claude Vellefaux
PARIS, France

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit

© EuroBloodNet 2019