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Co-author of Poster EHA

The 25th European Hematology Association Annual Congress has taken place in a virtual platform from the 11th of June to the 21st of June 2020 offering a view on hematology as a comprehensive discipline by way of the various types of sessions and diverse range of topics, including the latest news in hematology and its subspecialties, new evidence-based approaches to diagnosis and treatment and unpublished clinical and translational research results, innovative techniques, diagnostic tools and risk-assessment strategies (ERN-EuroBloodNet piece of news).

ERN-EuroBloodNet has presented a Poster co-written with some SCD patients association entited:

PRAGMATIC APPROACH TO EMPOWERING PATIENTS WITH SCD: TOP 10 RESEARCH PRIORITIES FROM THE EUROPEAN EUROBLOODNET/ASCAT NETWORK OF SCD PATIENTS (EHA-2299), showing the results from the Sickle Cell Disease (SCD) Research Prioritisation Workshop at the Annual Scientific Conference on Sickle Cell and Thalassaemia (ASCAT), as a joint project of the ERN-EuroBloodNet, ASCAT members and the patient engagement group Oxford Blood Group. The Top 10 questions represent the priorities that people living with SCD would like the research community to focus on.

Patients Associations Involved:

FMDT SOS Globi - Fédération nationale des associations de malades drépanocytaires et thalassémiques

APPDH Associação Portuguesa de Pais e Doentes com Hemoglobinopatias

Solace Sickle Cell Support Group

Euro Blood Net