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European Rare Blood Disorders Platform (ENROL)

Coordination team

Prof. Béatrice Gulbis

Prof. Béatrice Gulbis

Erasme University Hospital (ERASME) / LHUB-ULB

Brussels, Belgium

Prof. Marina Kleanthous

Prof. Marina Kleanthous

The Cyprus Foundation for muscular dystrophy research (CING)

Nicosia, Cyprus

Prof. Pierre Fenaux

Prof. Pierre Fenaux

Assistance Publique - Hopitaux de Paris (AP-HP)

Paris, France

Consortium principal investigators conform ENROL Coordination team, the executive body of the platform, in charge of the following functions:

  • To define ENROL's global strategy
  • To collaborate with the EU - RD - Platform and ERNs WG on Registries & EJP-RD
  • To develop the IT solution with adequate safeguards for secure data exchanging
  • Data processing of assets for protocols / application forms approved by SDAC

VHIR/HUVH is responsible for the scientific protocol of the platform, ERASME is responsible for the medical writing and CING is responsible for the development of the IT platform and processing of data according to the Study protocol. For the porpoises of the GDPR, VHIR/HUVH is designated as the platform controller. An agreement will be signed with CING as processor.








Euro Blood Net