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European Rare Blood Disorders Platform (ENROL)

Steering and Data Access Committee (SDAC)

The SDAC is the Governance body of the platform, formed by ENROL coordinators, representatives for domain specific experts committees (including health professionals and patients representatives (ePAGs)), ERN-EuroBloodNet Coordinators on research and guidelines working groups, and legal and ethical experts. The SDAC has the following responsibilities:

  • To define ENROL's Policy for data sharing
  • To define domain specific common data element and Research questions
  • To ensure the good use of assets;
    • Approve aggregated figures to be publically published by ENROL
    • Approve application forms from users of data
  • To establish the rules for peer-review publications

Euro Blood Net