Despite important advances, the rare disease community continues to face enormous challenges. The work and achievements of the awardees are of paramount importance to improving lives and finding cures for people living with a rare disease. Thus, EURORDIS Black Pearl awards are presented to the stars of the rare disease community - patient advocates, organisations, policy makers, scientists, companies and media - for their major achievements and their outstanding commitment to the rare disease cause.
The 8th edition of the EURORDIS Black Pearl Awards took place on 12 February 2019 at Le Plaza Hotel Brussels. The recipients of the EURORDIS Black Pearl Awards 2019 are:
Congratulations to all the winners!
For more information about the EURORDIS Black Pearl Evening, visit the official website: blackpearl.eurordis.org.