ERN-EuroBloodNet
 
Newsletter - February 2025
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
Rare Disease Day 2025 is here!
 
 

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers

 
 
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ERN-EuroBloodNet at EHA2025 Congress, save the date!
 
 

ERN-EuroBloodNet will be present on this EHA2025 through a dedicated meeting that will take place on Friday 13th June - 13:00-16:00. Agenda and registration link will be followed soon!

 
 
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ERN-EuroBloodNet clinical practice guidelines on Diagnosis and treatment of Burkitt lymphoma in adults has been published!
 
 

ERN-EuroBloodNet expert panel has reviewed recent advances in the management of Burkitt lymphoma in the first-line setting to develop updated evidence-based and expert opinion-based recommendations on the management of this disease.

 
 
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Innovative Therapies & Unequal Access: Addressing the Challenges in European Public Health for Rare Diseases
 

Mariangela Pellegrini from ERN-EuroBloodNet Addressed This Topic at ECRD 2024

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The European Commission launches new communication material on ERNs and Rare Diseases!
 

Check the 2 new factsheets and booklet celebrating the dedication and expertise of the ERNs that make a tangible difference to the lives of patients with rare diseases and their families

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JARDIN Care Pathways Toolkit for Healthcare Professionals & Patient Representatives
 

JARDIN Care Pathways Toolkit has been released to support healthcare professionals, managers and patient representatives in the co-design and development of the ERN care pathways being supported in the JARDIN Joint Action

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Three new ERN-EuroBloodNet Dissemination Pills already available!
 

The new webinar program has been created to increase awareness of concrete ERN actions and results in short 10-20 min format, check them!

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Keep updated on ERN-EuroBloodNet actions through its communication channels!
 

Subscribe to the newsletter and follow us on LinkedIn, X and Facebook!

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© ERN-EuroBloodNet 2025