ERN-EuroBloodNet
 
Newsletter - April 2026
 

Keep informed about the latest information on Rare Hematological Diseases!
 
 
NEWS
 
 
 
Save the date & register now for the ERN-EuroBloodNet meeting at EHA 2026!
 
 

The Board of the Network Meeting will take place on Friday, 12 June at 9:00.
 
 
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CALL FOR PARTICIPANTS - The ERN-EuroBloodNet is inviting you to participate in Medical Education Onsite Program
 
 

Learn about Acquired and Inherited Aplastic Anemia in Patients of All Ages by taking part in a preceptorship at Hôpital Saint-Louis, Paris, France.
 
 
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Op-ed: The EU needs a 28th Regime for life sciences
 
 

The op-ed co-authored by MEP Vytenis Andriukaitis, Maurizio Scarpa and Ruth Ladenstein was published in The Parliament Magazine.
 
 
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Draft Report with recommendations to the Commission on a European Union rare disease action plan
 

The European Parliament sets priorities for a more coordinated EU approach to improve rare disease care and reduce inequalities across Member States
Read more
 
 
 
 
  
Follow us on social media to stay up to date with the latest rare hematology news!
 

ERN-EuroBloodNet is now in Bluesky too, follow us!
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ERN-EuroBloodNet

ERN-EuroBloodNet
ERN-EuroBloodNet
Hôpital St Louis / Université Paris 7
1 avenue Claude Vellefaux
75475  
PARIS, France
 
 
Assistance Publique - Hôpitaux de Paris Hôpital Erasme LHUB - ULB Vall d'Hebron - Barcelona
 

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern

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© ERN-EuroBloodNet 2026