Keep informed about the latest information on Rare Hematological Diseases!

In February, the ERN-EuroBloodNet is launching the Online Educational Program on ENROL, the European Rare Blood Disorders Platform.

The program, co-designed by ENROL's consortium, ERN-EuroBloodNet ePAGs and EURORDIS as part of the ENROL Steering Committee, consists of three Webinars focused on different aspects of the European Registries on Rare Haematological Disorders.

Each webinar will be held from 5 pm to 6:30 pm (CET).

PROGRAM

• 1^St Webinar, 15^th of February 2023
  ENROL: Networking on European Registries in Rare Hematological Disorders
  Speakers: Dr. María del Mar Mañú Pereira (ERN-EuroBloodNet Scientific Director & ENROL Coordinator, Hospital Universitari Vall d'Hebron) and Loris Brunetta (Thalassaemia International Federation)
   
• 2^nd Webinar, 22^nd of February 2023
  How ENROL Supports Clinical Research                                                                 
  Speakers: Prof. Dr. Béatrice Gulbis (ERN-EuroBloodNet Co-coordinator, Hôpital ERASME-CUB, LHUB-ULB, Brussels) and Maria Piggin (PNH Support and PNH Global Alliance)) 

• 3^rd Webinar, 1^st of March 2023
  PROMs and PREMs in ENROL                                                               
  Speakers: Dr Mariangela Pellegrini (Educational & Patients Program Manager, Assistance Publique-Hôpitaux de Paris, Hôpital Saint-Louis) and Jacqueline Dubow (MDS Alliance (international) & Connaître et Combattre les Myélodisplasies (CCM)). 

You can register to the full program here!