ERN-EuroBloodNet
 
Newsletter - January 2023
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
The ERN Preceptorship experience in the CUB-Hôpital Erasme
 
 

Discover the experience of the coordinators and the participants!

 
 
Read more
 
 
 
 
Follow the three webinars for Patients on Rare Haematological Diseases Registries !
 
 

In February, the ERN-EuroBloodNet is launching the Online Educational Program on ENROL, the European Rare Blood Disorders Platform.

 
 
Read more
 
 
 
 
Next month be involved in Rare Disease Day 2023!
 
 

The Rare Disease Day team has led to your disposition, material and handbooks you can use to build awareness.

 
 
Read more
 
 
 
 
  
RADeep last press release is available!
 

Discover the lasts news about this project!

Read more
 
 
 
 
  
The 2023 EURORDIS Photo Award finalists have been selected
 

Vote for your favourite photo!

Read more
 
 
 
 
  
The EURORDIS Exchange of good practice webinar is now available!
 

Find all the material related to the webinar on EURORDIS website.

Read more
 
 
 
 
  
New IRDiRC call for Members!
 

Discover the newly approves task forces.

Read more
 
 
 
 
  
Are you ready for EHA2023 Hybrid Congress?
 

The preliminary program is already available on the EHA website!

Read more
 
 
 
 
  
Do not miss the next EJP RD's ERN Workshop: "Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach"
 

The in-person event will take place on 22-23 May 2023.

Read more
 
 
 
 
  
Keep updated on ERN-EuroBloodNet actions through its communication channels!
 

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© ERN-EuroBloodNet 2024