ERN-EuroBloodNet
 
Newsletter - July 2023
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
“Sickle cell disease landscape and challenges in the EU: the ERN-EuroBloodNet perspective” has been published at The Lancet Haematology!
 
 

The Viewpoint summarizes the role of ERN-EuroBloodNet to improve the overall approach and management of Sickle cell disease patients in EU through key actions developed by the network.

 
 
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ERN-EuroBloodNet at the General Assembly of the European Rare Disease Research Coordination and Support Action consortium (ERICA)
 
 

The ERN-EuroBloodNet presented in Madrid the results & next steps of the WP3 Patient-Centred Research in Rare Diseases.

 
 
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New Tele-expertise meeting on Rare Haemolytic Anaemias and Next Generation Sequencing (NGS)
 
 

The event has been the occasion to exchange best practices for the diagnosis and treatment of rare haematological diseases.

 
 
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CPMS Updates and New Guides
 

Have a look at our CPMS guides to be part of this project!

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IMPACT-AML Kick-starts its Mission!
 

The primary objectives were unveiled during the meeting, each aimed at revolutionizing the approach to R/R AML treatment and ensuring inclusivity and accessibility.

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Outcomes of the ERN-EuroBloodNet meeting at the EHA2023 Hybrid Congress
 

Discover the ERN-EuroBloodNet experience at the congress!

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GenoMed4All & ERN-EuroBloodNet Educational program on Artificial Intelligence in hematology for public-at-large
 

A new educational online program will be launched in September!

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