ERN-EuroBloodNet
 
Newsletter - September 2023
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
ERN-EuroBloodNet European Mapping for management of Venous Thrombosis and Arterial Thrombosis in Pediatric Patients – DEADLINE EXTENDED until 20th of October!
 
 

Is it time for an ERN-EuroBloodNet working group thrombosis? If you treat children with thrombosis, contribute to the mapping.

 
 
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Participate in the Global Survey for people living with Sickle Cell Disease!
 
 

This anonymous survey will assess the point of view of people living with Sickle Cell Disease (Patients, Parents' patients, Caregivers, Partners, Siblings) on how to improve the outcomes in Sickle Cell Disease

 
 
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ERN-EuroBloodNet Topic on Focus on Constitutional thrombocytopenia for health professionals has started!
 
 

The 2nd accredited online session of this educational program will be held next 11th of October.

 
 
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The ERN-EuroBloodNet coordination team has been expanded with the new incorporation in Paris!
 

Giulio Sannasardo has joined the ERN-EuroBloodNet coordination team, based at Hôpital Saint-Louis. Welcome on board!

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Do not miss the opportunity to take part in EHA advocacy!
 

Provide your input on the EC legislation's proposed definition of Unmet Medical Need by the EC.

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The 5th Progress Meeting will be held next 9th November 2023!
 

Block your agenda to attend the ERN-EuroBloodNet's event of every autumn.

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Keep updated on ERN-EuroBloodNet actions through its communication channels!
 

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!

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