ERN-EuroBloodNet
 
Newsletter - November 2023
 

Keep informed about the latest information on Rare Hematological Diseases!
 
 
NEWS
 
 
 
Sickle cell disease: embedding patient participation into an international conference can transform the role of lived experience has been published in the Orphanet Journal of Rare Diseases
 
 

The article analyses how the ERN-EuroBloodNet workshops with patients at annual ASCAT conferences have provided an opportunity to enhance patient experience and empowerment in SCD in Europe, producing benefits for patients, caregivers, patient associations and health professionals.
 
 
Read more
 
 
 
 
Are you going to miss the first ERN-EuroBloodNet Thursday webinar of 2024?
 
 

Register for the new webinar sessions on Rare Hematological Diseases organized in the frame of the ERN-EuroBloodNet Thursday webinar program.
 
 
Read more
 
 
 
 
Discover all the details of the 5th ERN-EuroBloodNet Progress Meeting
 
 

Thank you so much to the 127 attendants for their participation!
 
 
Read more
 
 
 
 
  
HELIOS project has started!
 

The first reunion of the HELIOS Management Committee was held last September.
Read more
 
 
 
 
  
The next ECRD will be held next May 2024!
 

Get ready for the next ECRD, a fully hybrid conference taking plane online and at the Square in Brussels.
Read more
 
 
 
 
  
EHA2024 will be held next June 2024 in Madrid!
 

Block your agenda with the published dates.
Read more
 
 
 
 
  
Keep updated on ERN-EuroBloodNet actions through its communication channels!
 

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!
Read more
 
 
 

ERN-EuroBloodNet

ERN-EuroBloodNet
ERN-EuroBloodNet
Hôpital St Louis / Université Paris 7
1 avenue Claude Vellefaux
75475  
PARIS, France
 
 

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern

You are receiving this newsletter because you are part of the EuroBloodNet inventory of members or because you subscribed. Your data is gathered and processed in line with the General Data Protection Regulation and in accordance with EuroBloodNet Policy. You can unsubscribe any time by clicking below or contacting coordination@eurobloodnet.eu.
 
 
© ERN-EuroBloodNet 2024