Keep informed about the latest information on Rare Hematological Diseases!

3rd ERN-EuroBloodNet Board of Network meeting was held last 13 and 14 November in Vall d'Hebron University Hospital, Barcelona, with the participation of more than 80 attendants and important new projects proposed for the upcoming period, check them!

First preceptorship has been hosted by AP-HP, Hôpital Saint-Louis under the coordination of Prof Regis Peffault de la Tour. 3 participants from Czech Republic, Lithuania and United Kingdom have benefited from this short stays and have shared with us their own experiences.

ENROL is conceived in the core of ERN-EuroBloodNet as an umbrella for both new and already existing registries on rare hematological disorders, aiming at avoiding fragmentation of data by promoting the standards for patient registries' interoperability released by the EU RD platform.