ERN-EuroBloodNet
 
Newsletter - June 2024
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
For World Sickle Cell Day 2024, ERN-EuroBloodNet is gathering the voices of people living with Sickle Cell Disease globally via a survey.
 
 

Updated second version of the anonymous survey to assess the points of view of people living with Sickle Cell Disease (patients, parents of patients, caregivers, partners, siblings) on how to improve outcomes in Sickle Cell Disease.

 
 
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The second training program on AI for Hematology, with GenoMed4All, is coming back!
 
 

Starting on 18th of September, the program contains 6 sessions for researchers and practitioners from the Health care Community.

 
 
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First International AL Amyloidosis meeting, for patients and doctors
 
 

This Hybrid event will take place the 5th and 6th of July in Brussels!

 
 
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Join the paediatric Patient Expert Group (PEG)!
 

This is an initiative of the EJP RD and as a member of this group, you will be involved in training courses, practical activities, and ad hoc tool preparation.

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ERICA Project General Assembly & ERN Research Conference
 

The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy.

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Save the date! #EHA2025 will be held in Milan, Italy from June 12-15.
 

Join the largest haematology event in Europe at the 30th EHA Congress, 12-15 June 2025!

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Rare Diseases Trainings organized by the EJP RD about the Virtual Platform
 

The EJP RD End-user Training Webinar will be held on June 26 & the training for resouces June 28!

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© ERN-EuroBloodNet 2024