Newsletter - May 2020

Keep informed about the latest information on Rare Hematological Diseases!

"ERN-EuroBloodNet Topic on Focus Cutaneous Lymphoma" starts with more than 200 registrations from all over the world!

The program has been approved with 7 credits by the EBAH to the participants attending to the full program

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EURORDIS Rare Barometer survey infographic on Rare Disease perspectives on data sharing and data protection is now available in 23 languages!

A graphic report has been also produced showing the results of the first International survey together with recommendations derived from the survey collecting 2013 respondents from 66 countries

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ENROL and the Top 10 research priorities from the European EuroBloodNet/ASCAT Network of Sickle Cell Disease Patients will be presented at the EHA 25th Congress

EuroBloodNet will present two posters during the 25th European Hematology Association Annual Congress, which will take place online June 11-21, 2020

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ERN-EuroBloodNet Real time Collaborative Platform on Red Blood Cell and COVID19 patients is open!

Join the ERN-EuroBloodNet Collaborative Platform on Red Blood Cell and COVID-19 to share clinical information for supporting daily medical practice and allow interprofessional consultations

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ELIXIR publishes 10 rules for making training materials FAIR

The implementation of the 10 rules allows the FAIRification of the training material, making them Findable, Accessible, Interoperable and Reusable

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Have you checked out "EuroBloodNet Thursdays Webinars" Program? Register now!

Webinar program is mainly addressed on very rare diseases, complex disorders, highly specialized procedures and implementation of guidelines

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!

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Hôpital St Louis / Université Paris 7
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PARIS, France

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit

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