ENROL has been conceived in the core of ERN-EuroBloodNet as an umbrella for both new and already existing registries on rare hematological disorders. Register to the online Kick off meeting next 2nd July!
The 19th of June is the World Sickle Cell Disease Awareness' Day (WSCD2020). ERN-EuroBloodNet is glad to participate to this event by creating two patients' testimony videos. Check on them on ERN-EuroBloodNet Youtube channel!
The Haemoglobinopathy Curation Expert Panel (VCEP), is a joint international effort between the ITHANET portal and the Global Globin Network of the Human Variome Project counting with the participation of ERN-EuroBloodNet members. Discover them!
The aim of the initiative is to establish a core outcome set (COS) to assist researchers in selecting outcomes for future trials and promote harmonization of NHL studies
ERN-EuroBloodNet ERN-EuroBloodNet Hôpital St Louis / Université Paris 7 1 avenue Claude Vellefaux 75475 PARIS, France
ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern
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