Newsletter - August 2020

Keep informed about the latest information on Rare Hematological Diseases!

An upgraded version of the ERN-EuroBloodNet Collaborative Platform on Red Blood Cell and COVID-19 patients has been released!

New data elements have been added according to the evolution of the COVID-19 pandemic. First relevant outcomes will be reported by October

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The Thursdays Webinars sessions from the first semmester are published on EuroBloodNet’s website and EuroBloodNet EDU YouTube channel!

These eight webinars have been focused on cutting-edge advances in the field of Acute Lymphoblastic Leukaemia, Pyruvate Kinase Deficiency, Hemochromatosis, Bone marrow failures, Chronic Lymphocytic Leukaemia, Cutaneous T Cell Lymphomas, Congenital dyserythropoietic anemias and Myelodysplastic Syndromes

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ERN-EuroBloodNet Collaborative Platform on Red Blood Cell and COVID-19 patients gathers patients from 13 European countries

The collaborative platform is an initiative conceived in the frame of ERN-EuroBloodNet, promoted by Vall d’Hebron University Hospital and Vall d'Hebron Research Institute

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After the summer break the webinars "EuroBloodNet's Topic on focus: Cutaneous Lymphoma" start again!

On Monday the 14th September at 5:00 pm (CEST) will take place another webinar session on Cutaneous Lymphoma “CD30+lymphoproliferations” provided by Prof. Dr. Werner Kempf.

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The EuroBloodNet Thursdays Webinars program restarts after the summer break!

Next Thursday 17th September with a session called “Genetic counselling of Hemophilia” provided by Prof. Dr. Patricia Aguilar Martínez.

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The European Comission publishes the evaluation of EU regulations on orphan and paediatric medicines

This is the first comprehensive evaluation since their adoption aiming to assess the strengths and weaknesses of the two regulations.

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Attend the next online meeting of the European Red Cell Society: “The Horizons in Red Cell Research” !

The next 11th September 2020 will take place the online meeting organized by the European Red Cell Society

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!

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