Newsletter - October 2020

Keep informed about the latest information on Rare Hematological Diseases!

An upgraded version of the ERN-EuroBloodNet Collaborative Platform on Red Blood Cell and COVID-19 patients has been released!

New data elements have been added according to the evolution of the COVID-19 pandemic. First relevant outcomes will be reported by October

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The European Commission together with the European Society of Intensive Care Medicine are supporting the EU healthcare systems and clinicians dealing with the COVID-19 pandemic on the front line

European Commission, DG SANTE has developed a free training programme on Intensive Care Fundamentals for Healthcare Professionals working at hospitals with Intensive Care Units, in all 27 EU Member States and the United Kingdom.

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Contribute to the ERN-EuroBloodnet European Mapping of Diagnostic Procedures: Intraocular Lymphomas! Deadline Extended until 15th November!

ERN-EuroBloodNet is conducting an exercise to better know the prevalence of Primary vitreo-retinal lymphomas and intraocular involvement of primary central nervous system lymphomas, and how these lymphomas are diagnosed, treated and monitored in “real life”.

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Do not miss: How to diagnose and treat a nursling with hematologic abnormalities?, the webinar program organized by Vall d’Hebron Hospital member of ERN-EuroBloodNet

The webinar program is divided on 4 online sessions in Spanish that will take place each Wednesday of next November at 16:00 pm (CEST).

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EJP RD has produced a Short guide on patient partnerships in rare diseases research projects

This guide will support applicants to describe the role and added value of patient partnerships in research proposals

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