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Newsletter - New repository of Guidelines & other CDMTs and search tool!
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
ERN-EUROBLOODNET REPOSITORY OF GUIDELINES AND OTHER CDMTS ARE SEARCHABLE AT THE NEW WEBSITE SECTION!
 
 

During last years, a number of Clinical Practice Guidelines (CPGs) and other Clinical Decision Making Tools (CDMTs) on Rare hematological diseases have been published at both national or European level. However, up to date, there is no repository of documents including quality assessment, evaluation of gaps or level of implementation, updates or any system to guarantee their usefulness and impact in patients' quality of life.

ERN-EuroBloodNet has dedicated efforts to tackle this gap through the compilation of a total of 117 CPGs and other CDMTs, and classification of 68 of them on Quality Domains including:

  • Scope and purpose
  • Patients' involvement
  • Rigour of development:
    • A: evidence and consensus-based guidelines / recommendations:  grading system for strength of recommendation involving assessment  of the quality of evidence (study design, study quality, consistency) (e.g. GRADE, SIGN)
    • B: consensus-based guidelines / recommendations: formal consensus development techniques (e.g. Delphi method, nominal group technique)
    • C: expert opinion: entirely based on opinions by experts without formal consensus development techniques

We are delighted to announce the launch of the repository of 68 CPGs and other CDMT available at the new dedicated section, including a search tool for their findability on Subnetwork, Disease group, Scope and Purpose and Rigour of Development approach! Check it now and discover the ERN-EuroBloodNet central platform for sharing best practices!

 
Read more
 
 
 

EuroBloodNet

EuroBloodNet
Hôpital St Louis / Université Paris 7
1 avenue Claude Vellefaux
75475  
PARIS, France
coordination@eurobloodnet.eu
 
 
 

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern

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