Newsletter - December 2020

Keep informed about the latest information on Rare Hematological Diseases!

EURORDIS Recommendations to achieve a mature ERN system in 2030

The paper, and the accompanying Policy Brief, reviews progress achieved so far and presents EURORDIS vision of a mature European Reference Network system that leaves no person living with a rare disease in uncertainty regarding their diagnosis, care and treatment.

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The EJP RD has launched an Internal Call for Innovation Project in Clinical Trials Methodology in Limited Populations!

The European Joint Programme on Rare Diseases (EJP RD) will implement the present internal (open to EJP RD beneficiaries and their linked third parties) call for collaborative innovation projects to support collaborations among groups of experts (methodological experts, clinicians, patients...) .

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The ERN-EuroBloodNet coordination team has been expanded with the new incorporation of an ERN manager in Paris!

Léa MARGOT has joined the ERN-EuroBloodNet coordination team, based at Hôpital Saint-Louis. Welcome on board!

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The 5th webinar of the EuroBloodNet's Topic on Focus: Cutaneous Lymphoma program already available on EuroBloodNet's EDU YouTube channel!

Visit the EuroBloodNet EDU YouTube channel to watch the 5th of the 8-session program Topic on Focus: Cutaneous Lymphoma, provided by Prof. Dr. Pietro Quaglino and Prof. Dr. Evangelia Papadavid

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Visit EuroBloodNet’s EDU YouTube channel to see newly added 5 EuroBloodNet Thursday webinars!

Another 5 recorded sessions from the EuroBloodNet Thursday Webinars program are available on EuroBloodNet’s EDU channel

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!

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Hôpital St Louis / Université Paris 7
1 avenue Claude Vellefaux
PARIS, France

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit

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