Keep informed about the latest information on Rare Hematological Diseases!

The paper, and the accompanying Policy Brief, reviews progress achieved so far and presents EURORDIS vision of a mature European Reference Network system that leaves no person living with a rare disease in uncertainty regarding their diagnosis, care and treatment.

The European Joint Programme on Rare Diseases (EJP RD) will implement the present internal (open to EJP RD beneficiaries and their linked third parties) call for collaborative innovation projects to support collaborations among groups of experts (methodological experts, clinicians, patients...) .

Léa MARGOT has joined the ERN-EuroBloodNet coordination team, based at Hôpital Saint-Louis. Welcome on board!