Newsletter - February 2021

Keep informed about the latest information on Rare Hematological Diseases!

New comprehensive webinar programs targeting patients or patients’ organizations are coming

Topic on Focus on Cutaneous Lymphoma (CL) for POs and a general program on Myelodysplastic Syndrome (MDS) for patients and their families

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Advances in Prenatal Diagnosis of monogenic diseases : “Coelocentesis”

"Embryo-fetal erythroid cell selection from celomic fluid allows earlier prenatal diagnosis of hemoglobinopathies" the study coordinated by  the ERN-Eurobloodnet member Prof. Aurelio Maggio, in collaboration with the "Franco e Piera Cutino" Foundation

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The EJP-RD ERN Research Training Workshops Call is now open!

The goal of the proposed workshops should be to train researchers and clinicians affiliated to ERN- Full  Members or Affiliated Partners in relevant topics on research in rare diseases

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The online registration for Topic on Focus: Thrombotic Microangiopathies webinars is open!

Webinar Program for health professionals named “Topic on Focus: Thrombotic microangiopathies” has been established as a result of fruitful collaboration between EuroBloodNet and the CNR-MAT, the French Reference Center for Thrombotic Microangiopathies, and will start the 3d of March. The registration is open now!

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

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ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit

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