Newsletter - March 2021

Keep informed about the latest information on Rare Hematological Diseases!

Newborn screening for sickle cell disease in Belgium

A request from Belgian SCD patients advocates’ group

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Topic on Focus: Thrombotic Microangiopathies webinars received official CME accreditation!

Webinar Program for health professionals named “Topic on Focus: Thrombotic microangiopathies” established in collaboration between EuroBloodNet and the CNR-MAT, the French Reference Center for Thrombotic Microangiopathies, has been accredited with 11 CME by the European Board of Accreditation in Hematology!

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The 4 coordinating onco-ERNs have expressed interest to continue the collaboration between the ERNs and the UK

The letter called "Continue the collaboration of rare cancers with European reference networks after Brexit" has been published in the Lancet

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ERN-EuroBloodNet lightening the Verona Arena for the International Rare Disease Day

Domenico Girelli involved at the event representing the ERN-EuroBloodNet

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The EJP RD Rare Disease Day Video is online!

Watch EJP RD contributors answer the web's most search questions about rare diseases!

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The EJP RD Research Mobility Fellowships funding opportunity is now open!

The call aims to support PhD students, Postdocs and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

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PARIS, France

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit

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