Newsletter - April 2021

Keep informed about the latest information on Rare Hematological Diseases!

The analysis of the first period of ERNs progress has been published!

European Reference Networks: challenges and opportunities is the name of the manuscript that comprises the analysis of the actual state and future of the ERNs

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Published on EuroBloodNet's Edu YouTube channel: Educational videos for people living with SCD!!

Videos of the SCD Patients' Educational Session at ASCAT 2020 are now published on the YouTube Educational Channel of the ERN, EuroBloodNet's Edu

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The importance of Next Generation Sequencing for the diagnosis of Rare Anemia Disorders

A study under the name “Usefulness of NGS for Diagnosis of Dominant Beta-Thalassemia and Unstable Hemoglobinopathies in Five Clinical Cases” has been recently published. Part of the team is composed by three different ERN-EuroBloodNet members.

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The Sickle Cell Disease Patients' Priorities Blog has been launched!

We invite everyone with sickle cell disease to send us entries for the blog

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Registration for Topic on Focus for Patients’ Organization on Cutaneous Lymphoma is open!

The comprehensive webinar program on CL targeting patients’ associations will start the 26th of April

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!

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ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit

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