EuroBloodNet
 
Newsletter - May 2021
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
The Assessment of the EU Member States’ rules on health data in the light of General Data Protection Regulation has been published by the European Commission
 
 

The study goes on to highlight that co-operation between the EU, Member States and relevant stakeholders is important, with a particular focus on the interests of patients

 
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The ERICA kick-off meeting has been held!
 
 

The different working packages have been presented on the last 27th and 28th May during the The European Rare disease research Coordination and support Action (ERICA) kick-off meeting.

 
Read more
 
 
 
 
First webinar session of the Topic on Focus for Patients Organizations on Cutaneous Lymphoma is now available
 

The video of the first session of the Topic on Focus for Patients Organizations on Cutaneous Lymphoma has been published on ERN-EuroBloodNet EDU YouTube Channel

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The first article on the SCD Patients’ Priorities Blog has been published!
 

The Sickle Cell Disease Patients' Priorities Blog has been recently launched

 
Read more
 
 
 
 
EJP RD's ERN Workshop: "Clinical Research: The Basics & Beyond"
 

The workshop is open by prior registration and selection to medical specialists affiliated to an ERN Full Member or Affiliated Partner institution and who have a special interest in clinical research with databases

Read more
 
 
 
 
Keep updated on ERN-EuroBloodNet actions through its communication channels!
 

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EuroBloodNet

EuroBloodNet
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ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern

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