The study goes on to highlight that co-operation between the EU, Member States and relevant stakeholders is important, with a particular focus on the interests of patients
The different working packages have been presented on the last 27th and 28th May during the The European Rare disease research Coordination and support Action (ERICA) kick-off meeting.
The video of the first session of the Topic on Focus for Patients Organizations on Cutaneous Lymphoma has been published on ERN-EuroBloodNet EDU YouTube Channel
The workshop is open by prior registration and selection to medical specialists affiliated to an ERN Full Member or Affiliated Partner institution and who have a special interest in clinical research with databases
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