Newsletter - August 2021

Keep informed about the latest information on Rare Hematological Diseases!

ERN-EuroBloodNet webinars for health professionals will continue in September!

After the summer break, four webinar programs will resume. Have a look at the program!

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The two ERN-EuroBloodNet Webinars programs for Patients and Patients Organizations restart after the summer break!

Check the upcoming webinars and register to receive the link!

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First article on the International Hemoglobinopathy Research Network (INHERENT) has been published with the endorsement of ERN-EuroBloodNet

“The International Hemoglobinopathy Research Network (INHERENT): an international initiative to study the role of genetic modifiers in hemoglobinopathies” has been recently published by the American Journal of Hematology

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Participate in “Retos y Oportunidades en el Seguimiento a Largo Plazo del Paciente Oncohematológico” the online course in Spanish organized by the ERN-EuroBloodNet Member Hospital Universitari Vall d'Hebron

The course that will be addressed next 3rd, 10th, 17th and 24th of November, has been supported by ERN- EuroBloodNet

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The National Organization for Rare Diseases (NORD) is organizing the NORD Summit 2021

This year the conference will take place on October, over two days 18th-19th.

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!

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Hôpital St Louis / Université Paris 7
1 avenue Claude Vellefaux
PARIS, France

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit

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