Newsletter - September 2021

Keep informed about the latest information on Rare Hematological Diseases!

The project "Connecting EuroBloodNet II" has recently finished with the identification of a new approach for the efficient use of CPMS and the development of ERN-EuroBloodNet’s e-learning environment

Actions initiated will be continued through "Connecting EuroBloodNet III" aiming to implement the CPMS customization and consolidate the EuroBloodNet eLearning platform

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GenoMed4All – Patient Engagement e-Workshop

GenoMed4All – A meeting with Myelodysplastic Syndromes, Multiple Myeloma and Sickle Cell Disease European patients’ associations

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The next EJP RD Resource Webinar is dedicated to European Paediatric Translational Research Infrastructure!

The webinar will be held next October 14th. Do not miss it!

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The European Joint Programme on Rare Diseases has launched the ERN Research Training Workshops!

The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full  Members or - Affiliated Partners in relevant topics on research in rare diseases.

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

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Hôpital St Louis / Université Paris 7
1 avenue Claude Vellefaux
PARIS, France

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit

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© EuroBloodNet 2021