Newsletter - October 2019

Keep informed about the latest information on Rare Hematological Diseases!

The Call for new members joining European Reference Networks is open until 30th November!

The call is an opportunity to enlarge the geographical coverage of the existing Networks, particularly from those Member States that are currently less represented.

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The ERN-EuroBloodNet 3rd Board of the Network meeting will take place next 13 and 14 November in Barcelona! Register now!

The meeting will take place at Vall d'Hebron University Hospital and will include Parallel sessions for active discussion on concrete projects.

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EuroBloodNet is recruiting a full time position for CPMS helpdesk in Brussels!

Application is open until November 15th

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Apply now to the EuroBloodNet Preceptorships for health professionals on Aplastic Anaemia and Paroxysmal Nocturnal Hemoglobinuria!

EuroBloodNet is endorsing three Preceptorships programs to provide applicants with the fundamental tools for a correct diagnostic and treatment approach to bone marrow failures, including AA and PNH in children, adolescents and adult patients.

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The EVIDENCE project, now recruiting researchers for the exploration of the properties and behaviour of erythrocytes in extra-cellular environment!

Erythrocytes properties and viability in dependence of flow and extra-cellular environment (EVIDENCE) project is a Marie Curie – Innovative Training Networks, present your candidature until 31st December 2019!

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The Joint Action on Rare Cancers presents the Rare Cancer Agenda 2030 at the European Parliament

An event hosted at the European Parliament has celebrated the successful completion of the EU Joint Action on Rare Cancers after three years of activity

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"New perspectives in the approach of children with hematological diseases and inborn errors" will be addressed next 5th November at Vall d'Hebron University Hospital

The meeting is organized by Vall d'Hebron University Hospital with the endorsement of ERN-EuroBloodNet

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"Safety and Efficacy of Mitapivat in Pyruvate Kinase Deficiency" has just been published

The study associates the administration of mitapivat with a rapid increase in the hemoglobin level in 50% of adults with pyruvate kinase deficiency

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