RADeep, the Rare Anaemia Disorders European Epidemiological Platform, is a joint venture conceived in the core of ERN-EuroBloodNet, the European reference network for rare hematological disorders (www.eurobloodnet.eu), as an umbrella for both new and already existing European patients’ registries in rare anaemias (RAs).

Ensuring interoperability with European structures fostering research; RADeep will allow mapping at the European level the diagnosis methods, demography, survival rate, main clinical features and treatments of RA patients in order to improve access to specialized and adequate health care and facilitate research and development of new treatments, thus increasing the knowledge and promoting best practices across EU.

Learn More

Rare Anaemia Disorders European Epidemiological Platform

SECURE SHARING AND RE-USE OF INFORMATION

EUROPEAN LEVEL INTEROPERABILITY

HIGH QUALITY DATA FOR RARE ANAEMIAS RESEARCH

MAXIMUM PUBLIC BENEFIT FROM DATA COLLECTED

RADeep’s main goal is to maximize public benefit from data on RAs opened-up through the platform with the only restriction needed to guarantee patient’s rights and confidentially in agreement with EU regulations for cross-border sharing of clinical data.

Our objectives

Our Team

Béatrice Gulbis

Hopital ERASME, Brussels, Belgium. RADeep President and Controller

María del Mar Mañú Pereira

University Hospital Vall d'Hebron - Vall d'Hebron Research Institute, Barcelona, Spain. RADeep Platform coordinator and processor

Victoria Gutiérrez Valle

University Hospital Vall d'Hebron - Vall d'Hebron Research Institute, Barcelona, Spain. RADeep Platform manager

Marina Kleanthous and Petros Kountouris

Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus. RADeep Platform developers and processors

Raffaella Colombatti

Azienda Ospedaliera di Padova, Italy. Platform protocol for re-use of data

Paola Bianchi

Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Italy. Platform protocol for re-use of data