Updated second version of the anonymous survey to assess the points of view of people living with Sickle Cell Disease (patients, parents of patients, caregivers, partners, siblings) on how to improve outcomes in Sickle Cell Disease.
This is an initiative of the EJP RD and as a member of this group, you will be involved in training courses, practical activities, and ad hoc tool preparation.
ERN-EuroBloodNet ERN-EuroBloodNet Hôpital St Louis / Université Paris 7 1 avenue Claude Vellefaux 75475 PARIS, France
ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern
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