Join the paediatric Patient Expert Group (PEG)!
This is an initiative of the EJP RD and as a member of this group, you will be involved in training courses, practical activities, and ad hoc tool preparation.
Are you an adolescent aged from 12 to 18 and living with a rare disease, including arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, giant cell arteritis) or multiple sclerosis? Are you interested in getting the skills to actively participate in scientific research to contribute to developing and shape the themes of health, raredisease, innovative research, healthcare, and children's rights?
Then the EJP RD initiative to set up a paediatric Patient Expert Group (PEG) is the perfect match for you!
As a member of this group, you will be involved in training courses (online and face-to-face), practical activities, and ad hoc tool preparation. Your mission will be to support the researchers participating in the invents project with your opinions and suggestions and to make the project a success for you and other children suffering from a rare disease.
Register to join the paediatric Patient Expert Group (PEG) to support the researchers!
- 28-29 September 2024
- Bari, Italy
- Deadline to show interest: July 10, 2024
Find additional information about the registration and the preliminary programme here.