ERN-EuroBloodNet
 
Newsletter - January 2025
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
IHI RealiseD Project Launches to Change the Paradigm for Clinical Trials in Ultra-Rare Diseases
 
 

The new European public-private partnership aims to optimise and accelerate the development of treatments for rare and ultra-rare conditions and ultimately improve the lives of millions of patients across Europe and beyond.

 
 
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New European survey on "Artificial Intelligence in Haematology: Knowledge and Perspectives"! Contribute before 25th February!
 
 

The aim of the European survey on "Artificial Intelligence in Haematology: Knowledge and Perspectives" is to understand the current interest and perspectives of the healthcare community about the concept of AI and its applications in haematology.

 
 
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The EU survey on SCD is still active!
 
 

ERN-EuroBloodNet is gathering the voices of people living with Sickle Cell Disease globally via a survey.

 
 
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Join us this 1st February the European Von Willebrand Disease awareness day 2025!
 

On February 1, the European Haemophilia Consortium (EHC) marks the European Von Willebrand Disease (VWD) Awareness Day to raise awareness of the disease among the bleeding disorders community and the wider audience.

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Develop Child and Orphan Devide Evaluation support (DeCODe) Project – Call for Support is now open!
 

Support is available for both new device development and the adaptation of existing products to better serve paediatric and orphan populations.

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Clinical Patient Management System 2.0 is already available!
 

CPMS 2.0 includes new functionalities that facilitates the use of the platform to share cross-border complex cases

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