The EU survey on SCD is still active!
ERN-EuroBloodNet is gathering the voices of people living with Sickle Cell Disease globally via a survey.
The updated second version of the anonymous survey to assess the points of view of people living with Sickle Cell Disease (patients, parents of patients, caregivers, partners, siblings) on how to improve outcomes in Sickle Cell Disease, is still active.
The survey is organised by the ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases), the ASCAT (Annualy Accademy for Sickle Cell and Thalassemia Conference) Steering Commitee and the Lancet SCD Commission.
If you participated in the initial survey, we kindly ask for your input once again, as your insights are crucial to our research. Your continued participation is highly valued and greatly appreciated.
This global survey targets individuals living with SCD (patients, parents of patients, caregivers, partners, and siblings) and aims to:
1. Prioritize actions needed to improve outcomes for SCD.
2. Gather feedback on additional unmet needs not addressed by the current strategy outlined in the survey.
We invite you to participate in the survey by clicking here, it will take no more than 10 minutes!
Or you can scan this QR code to the survey:
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