ERN-EuroBloodNet
 
Newsletter - May 2025
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
Check out where the ERN-EuroBloodNet booth will be at the EHA 2025 and the activities on the agenda!
 
 

The EHA Congress is the biggest event on hematology in Europe and will be held from 12th to 15th of June 2025.

 
 
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Save the Date! Launch the Charter for optimal care transitions in sickle cell disease.
 
 

The launch of the Charter for Optimal Transitions from Paediatric to Adult Care in Sickle Cell Disease will take place alongside the EHA conference in Milan on 12 June.

 
 
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The ERN-EuroBloodNet participated in the 22nd ERN Coordinators meeting & the meeting with the Board of Member States.
 
 

These two events were key in shaping the future of care for rare diseases across Europe.

 
 
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Exciting news of the Seventy-eighth World Health Assembly (WHA78)!
 

WHO elevates Rare Diseases to global health priority status with unanimous resolution

Read more
 
 
 
 
  
Follow us on social media to stay up to date with the latest rare hematology news!
 

ERN-EuroBloodNet is now in Bluesky too, follow us!

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