Save the Date! Launch the Charter for optimal care transitions in sickle cell disease.
The launch of the Charter for Optimal Transitions from Paediatric to Adult Care in Sickle Cell Disease will take place alongside the EHA conference in Milan on 12 June.
The official launch of the Charter for optimal care transitions in sickle cell disease will be a side event to the European Hematology Association Congress 2025.
The Policy Lab brings together patient advocates, patients, and clinicians from across Europe, led by the European Sickle Cell Federation (ESCF) and ERN-EuroBloodNet. It represents a consensus on the principles, expectations, and system-level actions necessary to improve the transition from pediatric to adult care and ensure improved outcomes for individuals living with Sickle Cell Disease.
During the launch of the Charter, you will be able to:
· Gain insights on the key care transition issues and opportunities from people with sickle cell disease, clinicians and policy experts;
· Discuss how the Charter supports broader rare disease and youth health policy priorities;
· Pledge your support for its recommendations.
Register now if you would like to attend in person or join virtually!
Date: Thursday 12th June
Time: 10:15 - 11:15 CEST
Location: Milan, Italy
Join us as we work together to ensure no young person is left behind during this critical stage of care!