ERN-EuroBloodNet
 
Newsletter - June 2026
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
Highlights of the Health without Postcodes event at the European Parliament
 
 

ERN-EuroBloodNet was represented by our Scientific Coordinator, Dr María del Mar Mañú Pereira, who moderated the final exchange with Members of the European Parliament.

 
 
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World Sickle Cell Disease Day 2026: Turning patient voices into awareness and education
 
 

ERN-EuroBloodNet, in collaboration with the RADeep network, has developed a new infographic on “Sickle Cell Disease & Sexual Health”

 
 
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ERN-EuroBloodNet results from the Eurordis Rare Barometer survey on the mental health of people with rare diseases
 
 

Insights from 87 participants from ERN-EuroBloodNet representing 27 rare hematological diseases across Europe

 
 
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ERDERA launches Clinical Trial Call 2026 to advance early‑phase clinical trials for rare diseases
 

Applications open until 10 September 2026

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2026 call for applications: Affiliated Partner within the European Reference Networks
 

The European Commission has launched the 2026 Call for Affiliated Partners within the European Reference Networks (ERNs)

Read more
 
 
 
© ERN-EuroBloodNet 2026