Newsletter - July 2020

Keep informed about the latest information on Rare Hematological Diseases!

European Rare Blood Disorders Platform (ENROL) online Kick off meeting was successfully held last 2nd July with more 120 registered participants, thanks to all!

ENROL has officially started 1st June 2020, conceived in the core of ERN-EuroBloodNet as an umbrella for both new and already existing registries on rare hematological disorders. Check out the outcomes and slides from the meeting!

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Contribute to the ERN-EuroBloodNet European Mapping of Diagnostic Procedures: Primary Central Nervous System Lymphomas! Deadline extended until 31st August !!

ERN-EuroBloodNet is conducting an exercise to better know the prevalence of Primary vitreo-retinal lymphomas and intraocular involvement of primary central nervous system lymphomas, and how these lymphomas are diagnosed, treated and monitored in “real life”.

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EuroBloodNet's EDU YouTube channel has been launched!

We are immensely proud to inform you all that EuroBloodNet has its own educational YouTube channel.

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The two first webinars of the EuroBloodNet's Topic on Focus: Cutaneous Lymphoma program already available on EuroBloodNet's EDU YouTube channel!

EuroBloodNet's Topic on focus CL "Introduction to Cutaneous Lymphoma" provided by Prof. Dr. Rein Willemze and "Mycosis Fungoides" provided by Prof. Dr. Maarten Vermeer are now available on EuroBloodNet's EDU YouTube channel.

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The first EuroBloodNet's Cutaneous Lymphoma Virtual Board online clinical meeting in CPMS has taken place!

The implementation of CPMS allows medical consultation across national borders

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Four new “One-page guide” documents to support the use of CPMS available at EuroBloodNet’s How to use CPMS section!

The ERN-EuroBloodNet’s Operational Helpdesk has produced four new documents “One-page guides” to support users in accessing and working in the CPMS by providing them with simple and concrete key steps, discover them!

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Two new ERN reportages launched by the European Commission!

Two reportages have been launched by the European Commission to support and disseminate the beneficious work of the 24 different European Reference Networks

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Submit your nominations for the 10th edition EURORDIS Black Pearl Awards!

The awards categories and nomination criteria have been presented for the 10th edition of the EURORDIS Black Pearl Awards

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

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ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit

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