The European Commission has produced two reportages to support and disseminate the beneficious work of the 24 different European Reference Networks (ERNs).
The first one, " Rare diseases: how the European Reference Networks support health professionals", showcases health professionals testimonials of ERNs members who illustrate the valuable work that ERNs do on the development of their four main areas of action: clinical virtual consultations, research, clinical practices guidelines, education and training.
The second one, "Rare diseases: how the European Reference Networks support patients", is addressed to patients collecting the testimonial of an ERN patient representative and illustrates the work and the important labour of the ERNs.
This two reportages and many more produced by the European Commission are available on their website!