Newsletter - September 2020

Keep informed about the latest information on Rare Hematological Diseases!

An upgraded version of the ERN-EuroBloodNet Collaborative Platform on Red Blood Cell and COVID-19 patients has been released!

New data elements have been added according to the evolution of the COVID-19 pandemic. First relevant outcomes will be reported by October

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Contribute to the ERN-EuroBloodNet European Mapping of Diagnostic Procedures: Primary Central Nervous System Lymphomas! Deadline extended until 15th October !!

ERN-EuroBloodNet is conducting an exercise to better know the prevalence of Primary vitreo-retinal lymphomas and intraocular involvement of primary central nervous system lymphomas, and how these lymphomas are diagnosed, treated and monitored in “real life”.

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The ERN-EuroBloodNet 4th Board of the Network meeting

The 22nd and 23rd October ONLINE will take place the 4th ERN-EuroBloodNet BoN meeting

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ERN-EuroBloodNet and EURORDIS working for the establishment of the European Network of Sickle Cell Disease Patients Organizations

Italy, France, Spain and Portugal, the first countries with stablished National Representatives

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ERN-EuroBloodNet ensures secure health data exchange of patients with rare hematological diseases thanks to eHealth Digital Service Infrastructure for the ERNs

The European Commission together with the European Reference Netowrks set up the eHealth Digital Service Infrastructure for the ERNs, including the Clinical Patient Management System for interprofesional consultation of complex cases

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Last advances in Congenital Dyserythropoietic Anemias

A review of Congenital Dyserythropoietic Anemias has been recently published by EuroBloodNet members Achille Iolascon, Immacolata Andolfo and Roberta Russo

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The 4th webinar of the EuroBloodNet's Topic on Focus: Cutaneous Lymphoma program already available on EuroBloodNet's EDU YouTube channel!

EuroBloodNet's Topic on focus CL "CD30+lymphoproliferations" provided by Prof. Dr. Werner Kempf is now available on EuroBloodNet's EDU YouTube channel.

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Keep updated on ERN-EuroBloodNet actions through its communication channels!

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PARIS, France

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