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ERN-EuroBloodNet ensures secure health data exchange of patients with rare hematological diseases thanks to eHealth Digital Service Infrastructure for the ERNs

ERN-EuroBloodNet ensures secure health data exchange of patients with rare hematological diseases thanks to eHealth Digital Service Infrastructure for the ERNs

2020-09-01
ERN-EuroBloodNet ensures secure health data exchange of patients with rare hematological diseases thanks to eHealth Digital Service Infrastructure for the ERNs

The European Commission together with the European Reference Netowrks set up the eHealth Digital Service Infrastructure for the ERNs, including the Clinical Patient Management System for interprofesional consultation of complex cases

The European Reference Network (ERN) EuroBloodNet aims to facilitate the equal access to highly specialized healthcare to thousands of patients affected by Rare Hematological Diseases (RHDs). For that reason, multiple resources are facilitated aimed at facing the challenges of RHDs.

The European Commission together with the European Reference Networks set up the eHealth Digital Service Infrastructure for the ERNs.With support of funds from Connecting Europe Facility, DG SANTE developed two IT systems necessary for proper cooperation among the members of all the European Reference Networks, including ERN-EuroBloodNet..

These platformsare the ERN Collaborative Platform (ECP) and the Clinical Patient Management System (CPMS).

CPMS  constitutes a secure web-based application to support the networks in bringing expert specialised care to all patients in Europe on the diagnosis and treatment of rare or low prevalence complex diseases or conditions across national borders. See further information at the dedicated EuroBloodNet CPMS Helpdesk website section!