Keep informed about the latest information on Rare Hematological Diseases!

​​​​​​​GENOMED4ALL will make use of the existing infrastructures and initiatives, including powerful High-Performance Computing facilities, hospital registries, data processing tools, and pre-existing repositories towards facilitating personalised medicine in common, rare and ultrarare haematological diseases to demonstrate the versatility and utility of the solutions. For doing this, GENOMED4ALL counts with the participation from ERN-EuroBloodNet

ERICA will promote inter-ERN research activities and establish firm collaborative ties with existing European and international infrastructures and consortia involved in rare disease research and innovation. ERN-EuroBloodNet will coordinate WP3-Patient Centred Research in close collaboration with Orphanet.

The SCD Patient Educational Session at ASCAT has provided for the second year the perfect opportunity for patients to experience how important is to participating in Research’s Agenda, while demonstrated the that the medical profession is willing to change and listen to the patient voice.