ERN-EuroBloodNet
 
Newsletter - May 2023
 

Keep informed about the latest information on Rare Hematological Diseases!
 
 
NEWS
 
 
 
The ERN-EuroBloodNet will be present at the EHA2023!
 
 

Do not miss the opportunity to stay updated on the last results on Rare Haematological diseases.
 
 
Read more
 
 
 
 
Now available: ENROL recommendations for interoperability!
 
 

The EU RD-CDS codification schemes have been used for the ENROL Rare Haematological Diseases Common Data Set (RHD-CDS).
 
 
Read more
 
 
 
 
The ERN Preceptorship experience in the Archbishop Makarios III Hospital
 
 

Discover the experience of the coordinator and the participants!
 
 
Read more
 
 
 
 
  
The ERN-EuroBloodNet is mapping the availability of PNH Drugs and its reimbursement states in European Member States
 

The results of this study will be used for a policy report delivered to policymakers and regulatory bodies.
Read more
 
 
 
 
  
ERN-EuroBloodNet European Mapping for management of Venous Thrombosis and Arterial Thrombosis in Pediatric Patients – Open until 30th June!
 

Is it time for an ERN-EuroBloodNet working group thrombosis? If you treat children with thrombosis, contribute to the mapping
Read more
 
 
 
 
  
ERICA WP4 Survey on ERNs anc Clinical Research
 

ERN Coordinators and HCP Members of ERNs are invited to participate!
Read more
 
 
 
 
  
The International Summer School on Rare Disease Registries and FAIRification of Data registry will take place next September!
 

It has been organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP-RD task partners
Read more
 
 
 
 
  
Keep updated on ERN-EuroBloodNet actions through its communication channels!
 

Subscribe to the newsletter and follow us on Twitter, LinkedIn and Facebook!
Read more
 
 
 

ERN-EuroBloodNet

ERN-EuroBloodNet
ERN-EuroBloodNet
Hôpital St Louis / Université Paris 7
1 avenue Claude Vellefaux
75475  
PARIS, France
 
 

ERN-EuroBloodNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern

You are receiving this newsletter because you are part of the EuroBloodNet inventory of members or because you subscribed. Your data is gathered and processed in line with the General Data Protection Regulation and in accordance with EuroBloodNet Policy. You can unsubscribe any time by clicking below or contacting coordination@eurobloodnet.eu.
 
 
© ERN-EuroBloodNet 2024