The International Summer School on Rare Disease Registries and FAIRification of Data registry will take place next September!
It has been organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP-RD task partners
As part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of Data is a 5-day training programme organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP-RD task partners, aimed at the international research community, clinicians, medical specialists, registry curators, database managers, healthcare professionals and rare disease patients' representatives.
The in-person training will take place from September 26th - 30th at ISS in Rome, Italy. It consists of two modules, and registration is possible for either module separately or for the course as a whole:
- "Rare Disease Registries", September 25th - 27th
- "FAIRification of Data", September 28th - 29th
Registration is currently open but will close on July 5th. As each training module is limited to 30 attendees, those chosen to participate from among the applicants will be informed by July 30th. The non-selected participants should consider themselves on a reserve list until 5th September 2023.
More information and registration here.