ERN-EuroBloodNet
 
Newsletter - September 2025
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
ERDERA's Open Session is now published and open to the public for registrations!
 
 

Join ERDERA’s Open Session on 30 October and be inspired by leading voices in rare disease research

 
 
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Spotlight on Excellence: Thursdays Webinars Welcomes ERN Coordinator Prof. Fenaux!
 
 

ERN-EuroBloodNet is delighted to announce the participation of its Coordinator, Professor Pierre Fenaux, holder of the oncological hub chair, in the Thursdays Webinars Series.

 
 
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Grupos de conversación online para personas con Anemia Falciforme
 
 

For our Spanish community: La Asociación Española de Enfermedad Falciforme (ASAFE) está organizando reuniones temáticas online este trimestre!

 
 
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Survey launched on what helps people live with a rare or undiagnosed condition
 

This survey is an initiative of EURORDIS-Rare Diseases Europe

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Call for Applications: 2026 EURORDIS Open Academy Schools
 

Don't miss this opportunity! Get involved in advancing the future of rare disease research and innovation!

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Follow us on social media to stay up to date with the latest rare hematology news!
 

ERN-EuroBloodNet is now in Bluesky too, follow us!

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