ERN-EuroBloodNet
 
Newsletter - May 2026
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
One week to go: Meet ERN-EuroBloodNet at EHA 2026!
 
 

Next week, ERN-EuroBloodNet will once again participate in the European Hematology Congress 2026.

 
 
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2026 call for applications: Affiliated Partner within the European Reference Networks
 
 

The European Commission has launched the 2026 Call for Affiliated Partners within the European Reference Networks (ERNs)

 
 
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The Health Leadership Mission for Rare Diseases is now live on website and social media channels!
 
 

HLM Rare evolves into Health Leadership Mission for Rare Diseases (HLM4Rare), a strategic, mission-oriented platform designed to move beyond political alignment and drive coordinated, measurable delivery for rare and complex diseases across Europe.

 
 
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The 13th European Conference on Rare Diseases and Orphan Products will be held on 3 & 4 June 2026
 

Dr María del Mar Mañú Pereira, Scientific Coordinatior of the ERN-EuroBloodNet, will be participating on the Closing pleanry

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Register now for the World Orphan Drug Congress Europe 2026!
 

The World Orphan Drug Congress Europe will take place 26-28 October, 2026 in Amsterdam.

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“Rare Diseases: Placing Patients at the Centre of a European Framework”, marked a key step towards an EU Action Plan for Rare Diseases.
 

The event was hosted at the European Parliament, and co-organised by MEP Nicolás González Casares and EURORDIS-Rare Diseases Europe

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© ERN-EuroBloodNet 2026