ECRD is the largest patient-led, rare disease policy-shaping event held in Europe, taking place this year in Prague and on a highly interactive virtual platform. With over 700 participants, the Conference is an unrivalled opportunity to network and exchange invaluable insights within the rare disease community.
María del Mar Mañú Pereira, Scientific Coordinatior of the ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases), is speaking at the 13th European Conference on Rare Diseases and Orphan Products on 3 & 4 June 2026.
The ECRD2026 will serve as a pivotal milestone in the multi-stakeholder inclusive process towards developing an EU Action Plan for Rare Diseases.
Join the ECRD to play an active role in shaping the future of rare disease policy in Europe and beyond!
Registrations to attend the conference in-person have now sold out. However, registrations to join the conference online, via a highly interactive virtual platform, will remain open up until the conference.
Please note that ECRD 2026 is CPD accredited, offering 12.75 hours of Continuing Professional Development for healthcare professionals, researchers, and policy leaders working in the rare disease field.